My sister’s “ordinary life” By Saba Salman

fragilex2My sister Raana recently made a film about her everyday life that was shown to an audience of 130 people at a conference in London


This is a remarkable achievement by any standard. It’s all the more impressive given that Raana, who travelled by train from Hampshire with her support worker and sat confidently in the conference auditorium, used to find public transport stressful and crowds overwhelming.

Although Raana still dislikes busy, noisy environments, gets unsettled at unfamiliar surroundings and finds communication tricky, the fact she made a film and shared it at a public event reflects what people with Fragile X and other learning disabilities can achieve - with the right support…

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