From their website: Join us in October for Rett Syndrome Awareness Month!
Thousands of children and adults suffer from the limitations and challenges of living with Rett syndrome. They need YOU to spread the word about Rett syndrome this month.
As a rare disease, Rett syndrome affects 1 in 10,000 girls and even fewer boys. Countless people across the country still haven’t heard of Rett syndrome, which is why October is crucial for awareness, advocacy, and education.
Spread the word. Share your story. Be their voice.
About Rett Syndrome
Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression at 6-18 months.
Rett syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake.
Cognitive assessment in children with Rett syndrome is complicated, but we know that they understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions...